"For all of my husband's illness, I'd remember things he had forgotten. He thought he lost his appetite, but I said, “No honey, that isn't the way it worked. I had lists. I had the medications. I knew just how much he needed, the what, when, where and why," the Daily Express quoted Niemi as saying.
"I was an advocate for Patrick because I didn't know any other way to be. But, during that time, I learned that getting the right help involves asking the right questions, and sometimes that''s the hardest thing for the patient to do," she added.
Niemi has asked the sick to prepare their questions in advance, take notes during doctor visits and be vocal about any changes.